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Rotator Cuff disease Options
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Joanne C
#1 Posted : Wednesday, February 15, 2012 6:41:12 PM Quote
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Hi Folks

As some of you know I've been having shoulder problems for some time, usually quite intermittently but seems to be getting worse of late especially on the left. Saw my rheumy last month, who took fresh xrays of shoulders and feet had my copy of letter to GP through this morning.

Confirmed is secondary OA in both shoulder joints (which had been diagnosed previously) but with upward migration in the left which suggests some rotator cuff disease. As i've been having a creaky time of late she thinks this is down to the long term damage rather than the Enbrel losing it's effectiveness this seems to be supported by my CRP being at 6mg/l .

Has anyone else had any rotator cuff issues? I'm going to be attending a combined appointment with my rheumy and my wonderful orthopaedic surgeon, so having some inside info might be good.

Thanks in advance :)

Jo. x
2012 Fundraising for the National Rheumatoid Arthritis Society (NRAS) http://uk.virginmoneygiving.com/RoboJo
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smith-j
#2 Posted : Wednesday, February 15, 2012 7:47:39 PM Quote
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Joanne

Sorry can't help as never heard of this. However good to know your Rheumy and Orthopaedic Consultant are consulting. My knee surgeon is exasperated with my recovery but seems to know very little about the implications of RA. Strange when it can all involves bones.

Good luck and I hope they can find a solution for you.

Jackie
xx
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Joanne C
#3 Posted : Wednesday, February 15, 2012 7:57:00 PM Quote
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Thanks Jackie,

I do hope your knee settles down soon, having had knee problems before the replacement I know how frustrating it can be.

I'm so fortunate that my orthopaedic surgeon specialises in people with RA, and only a few miles from home too.

Jo. x
2012 Fundraising for the National Rheumatoid Arthritis Society (NRAS) http://uk.virginmoneygiving.com/RoboJo
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jenni_b
#4 Posted : Wednesday, February 15, 2012 10:24:22 PM Quote
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Location: nr Southampton
Hello Jo

I'm going to try enbrel again and it did work for me before
So we are trying again
8 yrs in
So a break and then enbrel again is considered approach

Anyway shoulder
I'm sorry about this
It sounds very painful

My shoulder sits forward
It's the ra
It looks very odd on xray apparently
Is that the same as it is with you?

Jenni xx
how to be a velvet bulldoser
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Dorothy-W
#5 Posted : Thursday, February 16, 2012 11:37:16 AM Quote
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hi jo, i am a sufferer of rotator cuff syndrome and boy it hurts,i now have O/A in both shoulders,but worse in the right which i was told due to it not being treated in time, i was in employment when it developed and the line manager would not support my request for a move of job station(she didnt like me),long story i worked in sanyo tv factory and not the best place i must say,anyway i did get a cortazone inj after many moans and trips to the gp,i was off for 5mth and ended up leaving job as could not even turn my head without pain, i was about 18mth before i felt it mobile without severe pain,i hope you get it sorted soon, i still have bad days when i cant use my right arm much as it hurts the shoulder,all i can do is rest,pain killers and wait till it eases up,i use a lavender wheat bag that you heat in the micro on my shoulder and it helps me,dorothy
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hen
#6 Posted : Thursday, February 16, 2012 2:21:25 PM Quote
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Hi Jo,
I've sent you a message on facebook but perhaps you'll see this first.
Before I had my shoulder replacement, the MRI scan suggested that my rotator cuff was torn but when the surgeon operated, although the rotator cuff was damaged, it was not torn.
That was almost 15 years ago now and the replacement shoulder is still doing ok. I can't lift my arm above my head but I couldn't beforehand either. Best thing is it gets rid of the awful pain.
Glad to hear that you have an appointment with your rheumy and ortho surgeon..it's so helpful when they communicate and work together. Great that your ortho specialises in RA too! Sounds like you'll be getting well looked after.
Good luck
Diane x
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Joanne C
#7 Posted : Friday, February 17, 2012 9:22:52 AM Quote
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Thanks for the tips Dorothy. I;ll have to dig out my wheat bag when the pain is bad.

Hiya Hen, aye did see it on FB too :) I think the pain is the worst part of it, especially when it radiates up into my neck. makes sleeping difficult though since I got my new mattress a few weeks back it's been a lot better. Interesting to read about shoulder replacement. Mr Thomas (my orthopaedic surgeon) told me I'd have to have both done at some stage.. I may have to call on your experience :)

Jenni I hope the Enbrel manages to help you again, you've had such an awful time this last 12-18 months. I wish there was something we could all do to help. Stay strong you wonderful lady x

Now.. about my planned abseils for this year ;)


Jo. x
2012 Fundraising for the National Rheumatoid Arthritis Society (NRAS) http://uk.virginmoneygiving.com/RoboJo
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ellie50
#8 Posted : Friday, February 17, 2012 2:09:01 PM Quote
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Hello Jo...

Sorry to hear about your painful shoulders. Fortunately for me, the RA only attacks my Rotator Cuffs occasionally but I try to relieve the pain and stiffness by doing a little exercise my Physiotherapist recommended which involves a tin of baked beans!

Yes, I thought she'd taken leave of her senses until she explained that by holding a 'weight' in your cupped hand and gently swinging your arm backward and forward you could encourage release of the shoulder joint without hardly any pain. This movement should never be forced and should only continue for a few seconds - and then change hands. If this feels comfortable then you could try swinging the 'weight' in front of your body from left to right which encourages the shoulder to release away from the side of the body - and then change hands.

A tin of baked beans works for me somethimes, when I can't move my arms in the morning, but I have to ask my husband to reach up into the cupboard to get them down for me!

I hope you enjoyed that - a bit of fun for a painful problem but it might help.

Smile

Ellie
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jenni_b
#9 Posted : Friday, February 17, 2012 3:06:10 PM Quote
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Location: nr Southampton
http://www.bidmc.org/You...usesofShoulderPain.aspx

Handy info on shoulder with pictures!
how to be a velvet bulldoser
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